Kathryn on her wedding day and me in Montego Bay, Jamaica |
A week ago, I drafted an apology for the lack of updates. I started by explaining how “insanely busy”
I’ve been throughout September and October.
It was similar to a recent talk I had with a personal trainer at the
gym. First you should know this guy was
not my trainer- I’m not that cool
or rich. Rather, I was waiting for
someone at the gym, and the trainer was nearby, so I chatted with him. I initiated the conversation by telling him
how I really want to make it to the
gym more, but I am just so busy with
this, and that, and this… He listened to the tales of my complicated life, then
shrugged and said, “If you want to be here, you’d be here. There are many people busier than you and
they get here. You have a lot of
excuses.”
I guess I could have been pissed off, but I tend to appreciate
straightforward people. And he was
right. I was making excuses.
The same goes for writing… I love it, and I love this blog. If I really wanted to, I’m sure I could have
posted an update. Lord knows I spend
enough time on Facebook commenting on photos.
So what has been holding me back?
When I started the blog, I wanted to inform my family,
friends, and colleagues of my decision to get a cochlear implant. I figured
it was easiest to update everyone all at once as social media carried my news
from person to person. It worked, but once
I published, I also realized the weight of my shame as a hearing impaired
person, its heavy presence on my shoulders day after day, and the constant
voice whispering, even in the presence of success, “You’re not good enough.” Sharing my feelings via the blog was an incredibly
freeing experience, an occurrence I credit for changing my life. I wasn't just ready to hear, but also to heal.
Following surgery, my activation and
initial weeks in rehabilitation proved to be challenging, and as frustrated as
I was with the new cochlear implant, I at least recognized as a writer that my experiences made for a good
story. I was also generally
optimistic. I figured in the months that
followed, I would persevere through my trials and tribulations. I predicted that one day I would say to you:
Yes, the beginning of this journey SUCKED, but LOOK AT ME NOW! I’d be sharing stories of how I talk for
hours on the phone with my friends, or how when driving in the car, I pick up
all the lyrics to a song, or how my new hearing makes me feel fully
competent, completely included, connected and whole.
I tend to describe my cochlear implant success based on how
well I communicate in “bigger” milestone events as opposed to everyday
occurrences. I realize this analysis
might not be the most accurate, but I can’t help but put more emphasis on the
significance of hearing during special occasions. Post-activation, it was my son’s communion
and my daughter’s birthday party—two events surrounded by a storm of
unrecognizable noise. NOT a great
hearing weekend. Then came my first
family vacation with the implant, and the reality that life with a processor
was often inconvenient. I mourned the
loss of natural hearing I once had in my right ear. I was also saddened by the difficulty I
experienced trying to understand multiple voices in a single setting.
With each milestone that passed, I hoped the next big event
would be better. May events were
difficult, I still struggled in June, but with the arrival of summer, and a few
different mappings, I thought I was on a better track. Though I still wasn’t
where I wanted to be, people around me were noticing a difference, saying I was
more relaxed and seemed to understand more than when I was without the
implant.
My BIGGEST event of 2012, the one occurring a whole six months
post-activation, was the wedding of my best friend, Kathryn. She and I talked about the occasion before I
even went through surgery, and I’d say things like, “I’ll be able to HEAR at
your wedding! YAYYY!”
This was NOT just any wedding. Oh no.
This was a full five-day event in Montego Bay, Jamaica, complete with
all-inclusive cocktails, a trip to the spa, uninterrupted, child-free time with
my husband, and more than 70 guests joining for what would be a
once-in-a-lifetime occasion. In my
airplane group alone were four sets of parents collectively leaving seven
children ages 8 and under with trusted babysitters. This does NOT happen every day, friends, and
I promised to embrace every second of Jamaica to the fullest.
And I did. The
wedding was beautiful, the resort was amazing… but it’s not a complete story if
I didn’t admit to the cochlear implant frustrations. First, before I even made it to LaGuardia Airport
en route to Jamaica,
the ear hook on my processor broke. Of
course, it was my last small one. I was
forced to use a large hook for the remainder of the trip, resulting in an
awkward fit around my ear. I spent the
first two days at the beach feeling my processor dangling from my head,
petrified it was going to get too wet and no longer work. But I didn’t sweat it… it was the trip of a
lifetime, and in the days that followed, I didn’t wear it at the pool or
beach. Was it hard to hear? Yes, but I was in Jamaica. No problem, Mon. Plus there were endless frozen drinks.
I was able to push the processor frustration aside, but
another remained. I had anticipated
hearing much better WITH the processor than what was actually occurring. I expected success in the airport (I had never
been able to hear in an airport before), but I found it just as difficult to
communicate as it had been in pre-implant life.
I also found group conversations to be more difficult than I expected.
At dinner one night at a restaurant at our resort, I sat
among some of my favorite people in the world—beloved family members, my best
friends, my husband’s best friends.
Conversation was occurring all around me in various directions, and
several times, people had said something to me but I failed to understand. For a few seconds, I let my frustration show,
and admitted to the table I was having a lot of trouble. As soon as I said it, I felt the tears coming.
I was NOT going to cry in Jamaica,
I had told myself, and I excused myself from the dinner to shake it off in the
ladies’ room. I later realized the tears were not just because I hope to do better, but because I realized, others so wanted it to be
better for me too. I saw the hope in
each person’s face that surrounded me at that dinner table. I often cry when I feel loved, and that night
I definitely did.
The next day- the wedding day- Kathryn had gone to her suite
to start getting ready. It was midday as
I sat by the pool when suddenly, those tears returned. But this time, there was no shaking it
off. This time, they flowed freely and
uncontrollably.
The few women around me understood I was emotional because
my best friend was getting married. I
blubbered on and on about how much we had been through together, how she
had been by my side at my wedding, and a bunch of other dramatic-girl sentences
that left all of us in bathing suits sniffling and hugging while slurping our daiquiris.
But it was more than that.
Perhaps prompted by the previous night at dinner, I had been
thinking about the cheerleaders in my life. I thought about how Kathryn had always wanted the best for me when it came to my hearing. Having lived together for four years during
college, she knew of my situation during a time when I spoke with very few
other people about it. Her understanding of me wasn’t just
because I shared my feelings with her, but because she saw it. She LIVED it.
And in many circumstances, she was my lifeline, filling in the missing
pieces when I didn’t understand, rephrasing or repeating when I needed it. Above all, I knew she didn’t see me as “the
hearing impaired friend,” but just as Pam.
I’ve been blessed to have developed other similar relationships since
that time, but considering how special Kathryn’s and my friendship is, and how
really, she served as the first person I truly “came out” to, it was completely
justifiable that I turned into an emotional basketcase three hours before the
wedding. I cried from a place of
gratitude.
So why haven’t I written?
Maybe it’s because the writer in me felt that the story was not getting
any more exciting. Maybe I felt I was
not only letting myself down, but letting others down, as well. Six months post-activation is really no
different than three months ago.
Sometimes life with the implant is fine, and other times, it’s
annoying. I remain grateful I can hear the
phone ring, but totally pissed that I can’t talk on the phone without
struggling.
Speaking of phones, I recently talked with my friend
Kathryn, now married and settling into life after Jamaica. We don’t speak
on the phone though… rather, we text each other for hours at a time, often providing
one another with amazing commentary during Real Housewives episodes.
In our last texting exchange, we talked about continuing to
motivate each other to work out, to maybe do a half marathon soon… and at the
end of the conversation, she suggested we put a phone call- a REAL one- in our schedules. She followed up by saying, “Who cares if you
can’t hear me? We can text about it
after.”
At this point in the journey, I seem to be at a plateau in
the climb. Still those who love me
continue to be patient and cheer for me, and even push me to try harder. I am grateful because frankly, I need it. The challenge continues, but I try to
remember what my friend Kathryn tells me: “You’ll get there.”
Beautiful. Can't wait to read more, but I will, until the words come in a way that you are ready to put them down.
ReplyDeleteThank you, Amanda. That means a lot coming from you. And that reminds me to finish reading your latest piece of brilliance!
DeleteI came to your blog because my daughter just received a cochlear implant on Monday! I appreciate all of your honesty, it gives me a little insight to what kind of challenges she may face some day.
ReplyDeleteIt made my day receiving your comment. Thank you for reading the blog! I hope your daughter is experiencing a relaxing recovery and minimal swelling. I looked a bit like a pumpkin following surgery.
DeleteFrom what I can tell, each CI recipient has a different experience. I know a woman who was completely deaf prior to surgery and was easily talking on the phone within a month following activation. INSANE. I haven't been so lucky. I still struggle to trust my implant, and to make sense of all the new sounds coming in. For me, it's been tough to re-train my brain, but I try to remember the small victories during challenging times.
Best of luck!
Pam
Hi, Pam! I think you might just be the only one of my CI friends that tells it like it is! And, if misery loves company, my progress closely resembles yours. I am about to get a CaptionCall. Have you checked into that? The phones are free and they come to you to install them. Jen Thorpe works for them! It can't hurt...you could talk to your bestie with the CaptionCall! And I know, I really do know, one day you and I both will hear things much more clearly. On a kind of funny side note, they are doing some testing on deaf gerbils. It sounds crazy but promising...google that when you get a chance.
ReplyDeleteHi Teresa! Thanks for reading. I've been thinking of you, and wondering about your journey. I don't have a CaptionCall phone, but I have a Cap-Tel phone, which is similar. Sometimes it works great and other times, not so much. Going into surgery, I assumed I'd no longer need these devices, but six months later I'm STILL using the phone on my natural side. Otherwise, phone voices would sound like computerized chipmunks, and I still wouldn't know what they're saying! I'll have to research the gerbils. Thanks!
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